I’m not sure where March went, but it’s just about behind us now…. taking both the good and the bad that came with it. I’m looking forward to April. It holds a lot of promise and I don’t want to miss a single moment of that.
One thing that I hoped to so more with, that got sidelined by any number of other things going on in March, was Endometriosis Awareness Month. So in these fleeting moments of March, I’d like to provide a small glimpse of what I live with on a daily basis.
I consider myself really very fortunate. It took a long time to figure out at least some piece of the puzzle for my, admittedly odd, personal health profile. A few doctors later, a few tries with various drug treatments later, and with a great deal of support from family and friends, I have what a great number of women with endometriosis do not have: relative stability of the disease. And I’m blessed to have that.
For now, I get to live above the disease. With a relatively low dose of medication each day, I have a way to live with a minimum of symptoms, a minimum of pain, a minimum of drug-related side-effects, and I have a drug plan that pays for all of it. For now, I enjoy this. I know that when I am off of the meds, things are completely different. I also know that it is possible that the treatment might just stop being effective, or may become too much for my system to metabolize, as long-term options can do. These aren’t examples of me fearing the worst. They are just facts. Facts that help me to appreciate what I have right now and enjoy the season while I’m living it. I might be blessed with a very long season. That would be a wonderful but I don’t take that for granted or any kind of right.
I already have it so much better than lots of women. The thing that is important to understand about endo is that it is a remarkably individual disease. While I believe this is true of many diseases and conditions (and not just the ones I live with), endometriosis effects each person quite differently. Some live with immense, constant pain. Some are unable to find a good doctor (or afford a doctor at all). Some find no help from the medications available and need drastic surgery to “cure” the disease. Some have so much damage done that they have no hope of having a child. Some cannot work or keep a job because they are so negatively impacted. Some have no one to care, support, or understand them…. family, significant others, friends, employers….
One of the strange things about endometriosis that I’ve experienced is that it can be difficult to talk about. Unfortunately, I guess it’s part of societal views where women’s health issues are still not always acceptable to discuss. There is no nationally known foundation or society for endometriosis ….. They exist, but mostly nobody has any clue that they do. Or anything about the disease or the challenges that so many women face because of endometriosis. Mostly in silence.
So there. That’s my contribution. Only a slice of my story, but it’s something I wanted to share this March.